GRG a/k/a goldenrulegirl
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Post by GRG a/k/a goldenrulegirl on Mar 2, 2019 9:11:10 GMT -5
raeoflyte - poor kid that's a lot to go through. I think I mentioned before that I had a childhood friend with Type 1. She's now a thriving 45 year old woman who regularly spends weeks cycling throughout Europe (she's a teacher so has a long summer break). I obviously don't know her daily routine but she certainly presents as happy and healthy. It is more than a kid should have to deal with, but we're thankful that he can grow up and lead a normal- even if complicated life. Always good to hear from adults with it that are doing well. I'm hoping we can do the cure de tour this summer. He hasn't really bonded with other T1d kids, but he likes meeting adults with it and being able to talk to them. And I'm not excusing the parents in this case, but I do understand the need for a miracle. We are so lucky to live 30 minutes from the leading diabetes research center who handles his care. They dropped everything to spend hours educating us so he wouldn't have to spend a weekend in the hospital. I like to think that most people--even if not by that kind of resources get a decent education, but I also know it isn't true. Kids in the hospital being diagnosed will have doctors tell them they can eat one thing and then nurses flip out and take trays away. Poor education on what causes and how to treat lows. The article doesn't state when the child was diagnosed, but I'm not sure it matters. 13 year olds aren't exactly known for following instructions and from talking to parents and reading I expect the teen years to be very difficult. Rebelling against their required medical care is very common. It's exhausting for kids and parents. I can definitely see a perfect storm happening that would leave parents clinging to a miracle cure. Not nearly the same medical issue, but I, too, anticipated tough teen years with my kids and their life-threatening food allergies (risk-taking by eating allergens or not carrying Epi Pens 24/7, or not taking symptoms of anaphylaxis seriously, etc.). Fortunately, a couple of food allergy organizations hold annual conferences designed and directed at teens. The sessions are presented by everyone from top allergy doctors and top allergy researchers (who both answer questions honestly and factually) to college kids who have spent semesters abroad and serve as positive examples for the kids. I bet there are similar conferences for kids with T1. We started attending the food allergy Teen Summits when YDS was 11, so we caught the kids “early” enough so that they headed into their teen years informed. Because, you know, parents are stupid even when they say the exact same things that are said st the teen conferences. 😜
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chapeau
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Post by chapeau on Mar 2, 2019 10:37:00 GMT -5
Similarly, my sister was a counselor at a summer camp for kids with diabetes. Camp Sweeney near Dallas. They had kids of all ages, and just about everyone on staff was either a medical professional or a college student who planned to go to med school. Some of the counselors she worked with had gone to the camp themselves as kids.
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justme
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Post by justme on Mar 2, 2019 11:06:44 GMT -5
On the local news this morning there was a story about measles and a vaccination conference taking place. They talked to a local pediatrician (actually in my girls' practice!) but then they interviewed a man attending the conference who claims that vaccinations have directly led to an increase in auto-immune diseases. They left his statement unchallenged and then went onto the next story Ugh. My SIL is at a conference or whatever today about children's health that is drawing the same conclusion. They also state that because we're #20 for childhood deaths (supposedly last on list of developed countries) it's because of vaccines and doctors. Ignoring that all the other developed countries have vaccines. There's also some former NIH director that's now antivaccine they laud. And a former producer of the doctors appears to be the keynote. Yay lets take health advice from a TV producer! These things are getting smart too. They started off with studies on how antibiotics are overused - which is true. Though they then immediately advised not giving your kids tylenol and letting their fever go up to 103/104 because that's the temp bacteria/viruses die at... which seems suspicious.
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NomoreDramaQ1015
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Post by NomoreDramaQ1015 on Mar 2, 2019 11:24:25 GMT -5
Put very simply they are correct a fever is a defense against invaders.
That being said their conclusion is what is faulty. A temperature that high requires medical attention because while you're body is trying to kill the invader it's also doing harm to itself. Your immune system can kill you in its attempt to save you.
You should not sit around and wait to see who wins.
I like to say 100% of people who see doctors die. Think about that for minute. I'm correct aren't I?
It's how I chose to phrase it that's the sinister part because I'm implying doctors are the cause not that will will all die eventually as a course of nature.
That is the scary thing about anti vaxxers. They use real data like about fevers above and twist it.
People are not learning and using critical thinking. We've taught people that all interpretations of data are equally valid and anyone who disagrees is "hiding" the truth.
When you cannot trust facts and the experts who generate them that's when society breaks down.
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justme
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Post by justme on Mar 2, 2019 11:27:16 GMT -5
I thought those were pretty dangerous temps for kiddos. For me I just take tylenol if it's over 103 for a bit and every time that's taken it down.
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NomoreDramaQ1015
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Post by NomoreDramaQ1015 on Mar 2, 2019 11:39:33 GMT -5
103 is when your brain starts to fry. That's why they tell you go to the ER if it gets that high.
Our bodies are not perfect. It regularly tries to kill us the fact any of are normal is a miracle of nature IMO.
This "all natural" crap is dangerous. Nature is not some benevolent entity that would grant us perfect health if only evil modern medicine would get out of the way.
It's elitism. The same people saying let you're kid have a 104 fever are the same people screaming about a wall to protect us from Ebola carrying illegals.
Well if you want to give yourself a 104 fever and be protected from cancer Ebola would certainly do the trick.
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Post by The Walk of the Penguin Mich on Mar 2, 2019 11:49:33 GMT -5
On the local news this morning there was a story about measles and a vaccination conference taking place. They talked to a local pediatrician (actually in my girls' practice!) but then they interviewed a man attending the conference who claims that vaccinations have directly led to an increase in auto-immune diseases. They left his statement unchallenged and then went onto the next story Ugh. My SIL is at a conference or whatever today about children's health that is drawing the same conclusion. They also state that because we're #20 for childhood deaths (supposedly last on list of developed countries) it's because of vaccines and doctors. Ignoring that all the other developed countries have vaccines. There's also some former NIH director that's now antivaccine they laud. And a former producer of the doctors appears to be the keynote. Yay lets take health advice from a TV producer! These things are getting smart too. They started off with studies on how antibiotics are overused - which is true. Though they then immediately advised not giving your kids tylenol and letting their fever go up to 103/104 because that's the temp bacteria/viruses die at... which seems suspicious. Actually, this is correct. Maybe not that high though. There is a classic study done, ironically, with I think measles (or chickenpox), where one group of kids had their temperatures very tightly controlled with Tylenol, the other group the temps were allowed to rise no higher than 102. The kids they allowed to run a fever recovered several days earlier. Viruses and bacteria are very fastidious with regards to temperature, and fever is a non specific way the human body has of fighting infection before the immune system can mount a response.
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justme
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Post by justme on Mar 2, 2019 12:00:33 GMT -5
Ugh. My SIL is at a conference or whatever today about children's health that is drawing the same conclusion. They also state that because we're #20 for childhood deaths (supposedly last on list of developed countries) it's because of vaccines and doctors. Ignoring that all the other developed countries have vaccines. There's also some former NIH director that's now antivaccine they laud. And a former producer of the doctors appears to be the keynote. Yay lets take health advice from a TV producer! These things are getting smart too. They started off with studies on how antibiotics are overused - which is true. Though they then immediately advised not giving your kids tylenol and letting their fever go up to 103/104 because that's the temp bacteria/viruses die at... which seems suspicious. Actually, this is correct. Maybe not that high though. There is a classic study done, ironically, with I think measles (or chickenpox), where one group of kids had their temperatures very tightly controlled with Tylenol, the other group the temps were allowed to rise no higher than 102. The kids they allowed to run a fever recovered several days earlier. Viruses and bacteria are very fastidious with regards to temperature, and fever is a non specific way the human body has of fighting infection before the immune system can mount a response. The key part is 102. The seminar she's at explicitly said to let it fevers go without intervention up to 104. She posted a photo of the slide on her social media so I saw the slide.
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Post by The Walk of the Penguin Mich on Mar 2, 2019 12:38:54 GMT -5
Actually, this is correct. Maybe not that high though. There is a classic study done, ironically, with I think measles (or chickenpox), where one group of kids had their temperatures very tightly controlled with Tylenol, the other group the temps were allowed to rise no higher than 102. The kids they allowed to run a fever recovered several days earlier. Viruses and bacteria are very fastidious with regards to temperature, and fever is a non specific way the human body has of fighting infection before the immune system can mount a response. The key part is 102. The seminar she's at explicitly said to let it fevers go without intervention up to 104. She posted a photo of the slide on her social media so I saw the slide. She bastardized the study, which is not uncommon from ANYONE. I see it all the time because I go back and read the original study (or I did while I had unlimited access to med school journals). They actually do this on both sides, sadly. I DO know the study did have some controls on how high they’d allow the fever to go. It was a pretty old paper, but well done. I want to say it came out in the early 1990s?
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justme
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Post by justme on Mar 2, 2019 12:44:50 GMT -5
The key part is 102. The seminar she's at explicitly said to let it fevers go without intervention up to 104. She posted a photo of the slide on her social media so I saw the slide. She bastardized the study, which is not uncommon from ANYONE. I see it all the time because I go back and read the original study (or I did while I had unlimited access to med school journals). They actually do this on both sides, sadly. I DO know the study did have some controls on how high they’d allow the fever to go. It was a pretty old paper, but well done. I want to say it came out in the early 1990s? For the record - my SIL is a participant at the seminar she's just taking photos of the slides. I'm not sure who is putting it on, but it looks like at least 1000 people there but I could be wrong. (Also - what? You mean a health seminar that brings in a TV producer as a speaker isn't interpreting studies right? Lol) Oh, I found it. The TV producer is also the producer of the VAXXED load of crap. Only 200 on FB said going - it's just in a really large church so it looks big.
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Post by The Walk of the Penguin Mich on Mar 2, 2019 12:52:09 GMT -5
She bastardized the study, which is not uncommon from ANYONE. I see it all the time because I go back and read the original study (or I did while I had unlimited access to med school journals). They actually do this on both sides, sadly. I DO know the study did have some controls on how high they’d allow the fever to go. It was a pretty old paper, but well done. I want to say it came out in the early 1990s? For the record - my SIL is a participant at the seminar she's just taking photos of the slides. I'm not sure who is putting it on, but it looks like at least 1000 people there but I could be wrong. (Also - what? You mean a health seminar that brings in a TV producer as a speaker isn't interpreting studies right? Lol) Have you ever listened to the news? How many times has cancer been cured the last 20 years? It really is hysterical, in that the news will take the last line of an abstract of how this study is important, and run with it. Normally, it will say something like “this function of this gene is important to the understanding of how cells can control the destruction of mutated cells, possibly becoming a new tool for using in killing cancer cells”. Curing cancer? That’s the interpretation that the producer/news cast team made.
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thyme4change
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Post by thyme4change on Mar 3, 2019 13:16:48 GMT -5
103 is when your brain starts to fry. That's why they tell you go to the ER if it gets that high. Our bodies are not perfect. It regularly tries to kill us the fact any of are normal is a miracle of nature IMO. This "all natural" crap is dangerous. Nature is not some benevolent entity that would grant us perfect health if only evil modern medicine would get out of the way. It's elitism. The same people saying let you're kid have a 104 fever are the same people screaming about a wall to protect us from Ebola carrying illegals. Well if you want to give yourself a 104 fever and be protected from cancer Ebola would certainly do the trick. When I was in my 20's I worked for a veterinarian and there was a big push for natural treatments for dogs and cats. He said "How about cyanide? That is all natural. Or maybe a shampoo made with poison ivy?" I only threw it out once when one of my condescending co worker was really badgering me about going to a homeopath (even though I had zero health complaints). I asked her if her lotion contained poison ivy, and because I was such a dick about it, it was never brought up with me again.
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zibazinski
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Post by zibazinski on Mar 4, 2019 7:14:35 GMT -5
There’s a large segment of pediatric groups that won’t see patients that aren’t vaccinated. I suppose if you’re against vaccines you may not care if your child gets ill, after all, that’s “natural “ but that worries me.
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chapeau
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Post by chapeau on Mar 4, 2019 8:25:40 GMT -5
A pediatrician’s office is such a Petri dish though. I remember when I was a kid there was a sick waiting room and a well waiting room. Now they’re all just one big room. I hate taking my fully vaccinated kid there, because she seems to pick something up or get worse every time we go. If I didn’t (or couldn’t) vaccinate on the regular schedule I think I might be afraid to take my child to the pediatrician.
Honestly, the more time I spend with people the more I fantasize about living on my own private island.
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zibazinski
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Post by zibazinski on Mar 4, 2019 8:39:08 GMT -5
We still have a sick and well room. DH waited in the hall. It was safer.
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gs11rmb
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Post by gs11rmb on Mar 4, 2019 9:02:12 GMT -5
There’s a large segment of pediatric groups that won’t see patients that aren’t vaccinated. I suppose if you’re against vaccines you may not care if your child gets ill, after all, that’s “natural “ but that worries me. I worry about the kids but I have no problems with a pediatrician's office refusing to treat. As a parent I would have been horrified to show up with my newborn for a check-up and walk through a waiting room containing a 7 year old with measles.
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gs11rmb
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Post by gs11rmb on Mar 4, 2019 9:05:26 GMT -5
For the record - my SIL is a participant at the seminar she's just taking photos of the slides. I'm not sure who is putting it on, but it looks like at least 1000 people there but I could be wrong. (Also - what? You mean a health seminar that brings in a TV producer as a speaker isn't interpreting studies right? Lol) Have you ever listened to the news? How many times has cancer been cured the last 20 years? It really is hysterical, in that the news will take the last line of an abstract of how this study is important, and run with it. Normally, it will say something like “this function of this gene is important to the understanding of how cells can control the destruction of mutated cells, possibly becoming a new tool for using in killing cancer cells”. Curing cancer? That’s the interpretation that the producer/news cast team made. John Oliver had a great episode about the interpretation of scientific studies. The best section was about the scientists who continue to get calls about their research where they found that farts might cure cancer. Spoiler alert... that's not what they found .
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Post by The Walk of the Penguin Mich on Mar 4, 2019 10:55:20 GMT -5
Have you ever listened to the news? How many times has cancer been cured the last 20 years? It really is hysterical, in that the news will take the last line of an abstract of how this study is important, and run with it. Normally, it will say something like “this function of this gene is important to the understanding of how cells can control the destruction of mutated cells, possibly becoming a new tool for using in killing cancer cells”. Curing cancer? That’s the interpretation that the producer/news cast team made. John Oliver had a great episode about the interpretation of scientific studies. The best section was about the scientists who continue to get calls about their research where they found that farts might cure cancer. Spoiler alert... that's not what they found . LOL! Everything I have been bitching about since I started working! Excellent!
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NoNamePerson
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Post by NoNamePerson on Mar 4, 2019 11:14:11 GMT -5
Have you ever listened to the news? How many times has cancer been cured the last 20 years? It really is hysterical, in that the news will take the last line of an abstract of how this study is important, and run with it. Normally, it will say something like “this function of this gene is important to the understanding of how cells can control the destruction of mutated cells, possibly becoming a new tool for using in killing cancer cells”. Curing cancer? That’s the interpretation that the producer/news cast team made. John Oliver had a great episode about the interpretation of scientific studies. The best section was about the scientists who continue to get calls about their research where they found that farts might cure cancer. Spoiler alert... that's not what they found . and all you have to do is go to M S N dot COM to see 95% of these "scientific studies" Just click and click away thru the slide shows. They love the "if you eat this this will happen" and any other studies. And folks think because it is on the internet/msn if MUST BE TRUE.
I beg to differ with pizza being the most addictive food though!! I vote chocolate for some of us.
Thanks for posting the video - my LOL for this morning so far.
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NastyWoman
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Post by NastyWoman on Mar 4, 2019 11:37:35 GMT -5
NoNamePerson. you are right → chocolate is the most addictive food
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chapeau
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Post by chapeau on Mar 4, 2019 12:00:15 GMT -5
Have you ever listened to the news? How many times has cancer been cured the last 20 years? It really is hysterical, in that the news will take the last line of an abstract of how this study is important, and run with it. Normally, it will say something like “this function of this gene is important to the understanding of how cells can control the destruction of mutated cells, possibly becoming a new tool for using in killing cancer cells”. Curing cancer? That’s the interpretation that the producer/news cast team made. John Oliver had a great episode about the interpretation of scientific studies. The best section was about the scientists who continue to get calls about their research where they found that farts might cure cancer. Spoiler alert... that's not what they found . Clearly my husband has heard about that study. Too bad it doesn't work -- he'd make a fortune
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Post by The Walk of the Penguin Mich on Mar 4, 2019 12:39:17 GMT -5
NoNamePerson . you are right → chocolate is the most addictive food I’d disagree with this for me. I like chocolate, but don’t find it addictive. It isn’t my first choice on a dessert menu. I don’t find pizza addictive either, I like pizza but it isn’t always my first choice either. If I had to choose an addictive dessert, I’d choose angelfood cake. Fruit on it ramps that addiction up, but TD and I have been known to kill a while cake in an evening. For savory food, crab and shrimp are my addictions. I can’t walk away from these on a menu. I guess I’m weird.
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NoNamePerson
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Post by NoNamePerson on Mar 4, 2019 13:33:12 GMT -5
NoNamePerson . you are right → chocolate is the most addictive food I’d disagree with this for me. I like chocolate, but don’t find it addictive. It isn’t my first choice on a dessert menu. I don’t find pizza addictive either, I like pizza but it isn’t always my first choice either. If I had to choose an addictive dessert, I’d choose angelfood cake. Fruit on it ramps that addiction up, but TD and I have been known to kill a while cake in an evening. For savory food, crab and shrimp are my addictions. I can’t walk away from these on a menu. I guess I’m weird.We all have our brand of weirdness!!! That's why they make chocolate, strawberry, vanilla, red velvet, german, anglefood, cheesecake, catfish, salmon, snapper and all the million choices we have!!
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spartan7886
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Post by spartan7886 on Mar 4, 2019 15:34:34 GMT -5
103 is when your brain starts to fry. That's why they tell you go to the ER if it gets that high. Our bodies are not perfect. It regularly tries to kill us the fact any of are normal is a miracle of nature IMO. This "all natural" crap is dangerous. Nature is not some benevolent entity that would grant us perfect health if only evil modern medicine would get out of the way. It's elitism. The same people saying let you're kid have a 104 fever are the same people screaming about a wall to protect us from Ebola carrying illegals. Well if you want to give yourself a 104 fever and be protected from cancer Ebola would certainly do the trick. Really? I don't think my kid has ever run a fever less than 103. She hits 104 and 105 with regularity, and our pediatricians are pretty chill about it. The nurses freaked out when we told them about the fever-induced hallucinations, but the doctor just shrugged and said they'll go away when the meds kick in and the fever comes down.
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dannylion
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Post by dannylion on Mar 4, 2019 19:49:45 GMT -5
NoNamePerson . you are right → chocolate is the most addictive food I’d disagree with this for me. I like chocolate, but don’t find it addictive. It isn’t my first choice on a dessert menu. I don’t find pizza addictive either, I like pizza but it isn’t always my first choice either. If I had to choose an addictive dessert, I’d choose angelfood cake. Fruit on it ramps that addiction up, but TD and I have been known to kill a while cake in an evening. For savory food, crab and shrimp are my addictions. I can’t walk away from these on a menu. I guess I’m weird. You may claim my entire share of angel food cake. In perpetuity. It's all yours. You don't even need to ask. Just take it. Please.
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wvugurl26
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Post by wvugurl26 on Mar 4, 2019 19:56:36 GMT -5
I’d disagree with this for me. I like chocolate, but don’t find it addictive. It isn’t my first choice on a dessert menu. I don’t find pizza addictive either, I like pizza but it isn’t always my first choice either. If I had to choose an addictive dessert, I’d choose angelfood cake. Fruit on it ramps that addiction up, but TD and I have been known to kill a while cake in an evening. For savory food, crab and shrimp are my addictions. I can’t walk away from these on a menu. I guess I’m weird. You may claim my entire share of angel food cake. In perpetuity. It's all yours. You don't even need to ask. Just take it. Please. I'll donate mine as well. It has the weird taste to me.
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Post by The Walk of the Penguin Mich on Mar 4, 2019 20:09:08 GMT -5
Ok.
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thyme4change
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Post by thyme4change on Mar 4, 2019 20:38:25 GMT -5
There’s a large segment of pediatric groups that won’t see patients that aren’t vaccinated. I suppose if you’re against vaccines you may not care if your child gets ill, after all, that’s “natural “ but that worries me. I could be wrong, but it seems like anti-vax people form communities. If you get to a point where you think you know better than the entire medical establishment, you ask your like-minded friends what doctors will support your views. If your gang believes all modern medicine is a scam, then why would you even go to a pediatrician? You would go to the homeopath or whatever..if your only beef with the medical world is vaccines, I am sure there is a doctor that will take your money. And your anti-vax community will help you find one.
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Tennesseer
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Post by Tennesseer on Mar 5, 2019 12:45:29 GMT -5
I thought I had posted a story and link on this thread (apparently not) about an 18--year-old guy who once he turned 18 defied his parents and got himself caught up on all his vaccinations. Well the guy, Ethan Lindenberger, testified in front of Congress this morning and blamed Facebook and other social media sites for spreading misinformation about vaccines and the danger they cause to children. Teen who got vaccinated despite parents blames Facebook for spreading misinformationA teenager who testified before Congress on Tuesday about his decision to get vaccinated against his mother's wishes blamed Facebook and other websites for spreading misinformation about the risks of vaccines. Ethan Lindenberger, a high school student in Ohio, told the Senate Health Committee that his mother's views that vaccines were unsafe were bolstered after reading information shared on Facebook by "illegitimate sources." He specifically referred to "anti-vax" pages on Facebook, citing a study by The Atlantic that found that seven anti-vax pages generated 20 percent of the top 10,000 vaccination-related posts in a three-year period. "With my mother it continues to influence her views, along with countless Americans," Lindenberger said. Complete article here: Teen who got vaccinated despite parents blames Facebook for spreading misinformation
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gs11rmb
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Post by gs11rmb on Mar 5, 2019 13:18:34 GMT -5
I read about that a few days ago on NBC News where they quoted his mother who said his decision to get vaccinated was a slap in the face because "she felt [her son] was saying, "'You don’t know anything, I don’t trust you with anything. You don’t know what you’re talking about. You did make a bad decision and I’m gonna go fix it.'"
No shit, Sherlock... that's exactly what he was saying!
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