~ Moxie's Mood Altering Clinic ~

[Peace Of Mind]

Apr 23, 2012 10:12:54 GMT -5 Green Eyed Lady said:

Ok. Where are all the whack-jobs this fine Monday morning?

Here! Oops. Today is Wednesday. Hello fellow whack-jobs!

[femmefatale]

Yep, I miss Mox. She needs to get her arse back here. I'm in need of some therapy!

[Jaguar]

Moxie, Moxie come out, come out where ever you might be. ;D

[ՏՇԾԵԵʅՏɧ_LԹՏՏʅҼ]

Moxie comes and goes. Her last break from the boards was a long one. Hopefully she won't stay away as long this time.

[Jaguar]

Apr 27, 2012 20:49:28 GMT -5 ՏՇԾԵԵʅՏɧ_LԹՏՏʅҼ said:

Moxie comes and goes. Her last break from the boards was a long one. Hopefully she won't stay away as long this time.

I hope she comes back on here more.

[moxie]

Out this week. Back now.

[moxie]

I am tired...I will try to pop on tomorrow or Sun.

[Icelandic Woman]

WB Mox!!!
You have been

[moxie]

[moxie]

Is this board and myself invisible for some reason?

[moxie]

I just noticed that this board and my name are not appearing even though I have not edited my profile to be invisible...huh?

[Icelandic Woman]

I can see you and the board. ;D

[moxie]

I guess I am over tired. I better go to bed.

[moxie]

Take care, Ice. Good to see your smiling face.

[Icelandic Woman]

Have a Fantastic Weekend Mox!!!

[ՏՇԾԵԵʅՏɧ_LԹՏՏʅҼ]

Glad you're back, Moxie - your patients were getting restless. ;D

[moxie]

^Thanks, SL. They will be fine with a bit of wine/whine.

[moxie]

My asparagus is here...rhubarb too!

[moxie]

[moxie]

If you think you have it rough, read this story.

Parents' Bucket List for Dying Baby Girl Goes Viral
By Lauren Sher

Courtesy "Avery's Bucket List"

On Good Friday at around 3:30 p.m., Laura and Mike Canahuati of Houston got a call from a neurologist confirming their worst fear. The tests results showed their 5-month-old daughter Avery has a rare and incurable genetic disorder.

Avery was diagnosed with spinal muscular atrophy, a genetic disorder that attacks spinal neurons and progressively debilitates muscle function. Avery's was Type 1, the most severe kind, and doctors told them their little girl had only 18 months to live.

"We had several days of sitting in shock and crying and then we pulled ourselves out of that," Laura said. "Since we had such a short time, we knew we wanted to make the best of it."

To cherish every moment with Avery, the Canahuatis created " Avery's Bucket List," a blog written from Avery's perspective where they chronicle her world and track their family adventures, checking things off from the bucket list as they go.

The bucket list includes milestones in every child's life - from sitting up, kissing her mom and dad, to having a birthday party, meeting Santa Claus, losing a tooth, visiting college and more.

"We have our days, it's not that we don't," said Mike Canahuati, 31, who writes the blog in his daughter's voice. "The blog made it into … 'Let's go to the Canahuatis and smile at Avery and appreciate life instead of crying."

"I have a lot of living to do in just a little bit of time," Avery "writes" on the blog. "In everything I do, the two most important things are that I'm spending time with my mommy & daddy, while at the same time spreading awareness for SMA."

Avery's story and bucket list has struck a chord online. Since the Canahuatis started the blog earlier this month, it has racked up close to 500,000 page views, Mike said, with people as far as Malaysia, Hong Kong, Germany and New Zealand visiting it.

"When we saw how many people it was reaching in a few days, that's when we realized we could really get the word out on SMA and spread the word as much as we could," said Laura, who worked as a kindergarten teacher before giving birth to Avery, an 11-11-11 baby.

SMA is the No. 1 genetic killer of children under the age of 2 in the U.S., but most people don't know about it, Laura explained. An estimated one in 40 people are carriers of SMA. If both parents are carriers, like Laura and Mike are, there's a 25 percent chance of their child having SMA.

Laura and Mike urge all parents to talk to their OB GYNs and get tested to see if they are a carrier for SMA.

"Our goal for Avery to be the face of SMA. Just like when you say the word cancer, I don't think there's a single person who doesn't know what cancer is, we want it to be the same for SMA," Laura said.

Avery has already lost the ability to move her legs. She can barely move her arms and doctors say eventually she will be unable to move her head or breathe without the help of a respirator. Last week, she had a G-Tube put in so she can be fed through a line in her stomach and her parents constantly monitor her oxygen levels since babies with SMA have difficulty regulating their breath.


Courtesy Laura and Mike CanahuatiWhile her parents know Avery won't be able to fulfill many of the rites of passage that are on the list, they are finding joy in what their baby can do - tasting solid foods, taking a "big girl bath," flying a kite and blowing bubbles - and are finding a way to share in some of the later milestones with her now.

Fast forward a few years, Mike and Laura took Avery on her first college visit to their alma mater at Texas State University, earlier this month. Avery just got her very own (faux) driver's license made - one with an ugly pictures and one with a great picture, hitting two items on her list.

Thanks to some mommy matchmaking, she scored her first kiss from a boy named Cooper "McDreamy," who also has SMA.

"His name is Cooper and he's 19 months old (I just love older men, they're so much more mature than 3 & 4 month olds)," Avery gushes on the blog. "My mommy and daddy said this might be the best kiss since Ryan Gosling & Rachel McAdams in The Notebook."

Tonight, Avery will get to throw out the first pitch at a baseball game for a new minor league team in Houston, the Sugarland Skeeters. Another day, another adventure.

The last thing on the bucket list: to overcome her illness. Laura and Mike know that will not happen since the research is too far off to save Avery, but they hope their daughter's story will raise awareness for the disease and help find a cure.

"No one should have to go through this," Laura said.

Check out here blog here: averycan.blogspot.com/

[moxie]

Avery is SO adorable and so lucky to have such a wonderful mom and dad. Sad that she won't have a chance to live a long and happy life.

[moxie]

Found it!!

bump...

[moxie]

Please read Avery's story above.

[Jaguar]

I did moxie and I saved it in my fav's.

[Green Eyed Lady]

I read that the other night, Moxie. Or at least part of it. I saw the picture of that beautiful little angel and my heart broke, as did the eye dams. I couldn't finish it at the time. There are some things I just don't understand.

[moxie]

I know...two wonderful loving parents, a beautiful baby girl...and then tragedy strikes. The parents are awesome to be taking her on her/their bucket list journey. I want to see her in a pretty little prom dress and a beautiful little white wedding gown.

[moxie]

I LOVE the name Avery...it fits her too.

[moxie]

I am cleaning out my linen closet...it will take awhile. I really should have a garage sale...or better yet, donate it.

[moxie]

Closet's DONE!!

[Peace Of Mind]

Prayers for Avery! My doctor's daughter has just been diagnosed with incurable/inoperable brain cancer/tumor and she's only 4 years old. I just can't even imagine!

Congrats on the closet cleaning! I always love when I get something like that done. But I'm anal and just don't allow it to get messy again. OK - I'm really just lazy and it's easier to do a little straightening now and than an entire closet reorg.