cranberry49
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Post by cranberry49 on Nov 2, 2011 23:34:39 GMT -5
She breaks out with a very bad rash that is causing her life to be miserable! She was diagnosed with a condition that says she does not 'sweat.' I forget what it's called. Anyway, she breaks out in a terrible rash that is causing her such heartache.  I had her try virgin coconut oil....failed....Epsom salt soaks...failed... Does anyone else know of this disorder and if so what helped you? I will post the name of this condition as soon as I find out/remember.. Thanks to anyone that can help!  |
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Post by Deleted on Nov 3, 2011 0:12:33 GMT -5
The mayo clinic is my go-to site for anything health related. This is probably anhidrosis or hipohydrosis. There are a number of potential causes, so she needs to be working with a Dr to determine the cause in order to pursue the right treatment. If it turns out to be genetic, get her out of FL if that's where she lives!! www.mayoclinic.com/health/anhidrosis/DS01050 |
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mizbear
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Post by mizbear on Nov 9, 2011 1:03:11 GMT -5
If she has a medical condition that causes her to not sweat make sure she is NOT using an anti-perspirant. Make sure that whatever she uses is only marked as a deodorant. She may have to go without until she finds one. I have a friend that has a similar problem- but I can't remember what hers is called either.
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mmhmm
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Post by mmhmm on Nov 9, 2011 3:15:45 GMT -5
Your sister needs to see a doctor, Cranberry. Nobody can help her without seeing her, even if they're a doctor. You've got to see the patient, and the rash, and find out what other symptoms are present, what diseases might be present, and what medications/vitamins/over-the-counter meds she might be taking. If she really doesn't perspire, the doctor may be able to find out what's causing that and get treatment started. It may well be caused by the rash, but as I said, nobody can help her without seeing her.
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cranberry49
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Post by cranberry49 on Nov 9, 2011 5:03:56 GMT -5
My sister did see a dermatologist and he prescribed steroids, which helped to start with and then it started getting worse. She does not have any insurance so she can't afford to keep going to the dr all the time and buying expensive meds to experiment with. I should of mentioned this to begin with. Anyway, she's tried epsom salt soaks. along with other things, and nothing seems to work. I was just hoping that someone had either gone through this, or knows someone that has, and would know what worked for them. Thanks for the advice anyway...
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Forever Sunshine
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Post by Forever Sunshine on Nov 9, 2011 7:47:48 GMT -5
And if she can't afford whatever meds are needed to help with the condition, have her contact the pharmaceutical company. Most have a prescription plan where they'll help with the meds or provide them free of charge to those in need. It's worth the effort to contact the companies directly.
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Post by Deleted on Nov 9, 2011 8:33:24 GMT -5
We can't offer advice without knowing what the problem is.
I would find out the exact name of her condition and then read the mayo clinic's site. They do have suggestions for preventative measures listed as well as standard treatments.
(fixed typo)
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Formerly SK
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Post by Formerly SK on Nov 10, 2011 10:08:14 GMT -5
Google is your friend. If you have the actual diagnosis, pretend you have to write a ten page paper on it. Just keep researching link by link and get educated on the subject. I would think there is some sort of national support organization for it so just keep looking. You need to know WHY her skin is getting rashes (what makes the lack of sweating produce the rash). Is it inflammation? Lack of moisture? Break down each part of the issue as much as you can, and from there you will get an idea of OTC methods to try out.
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Post by Deleted on Nov 10, 2011 10:51:37 GMT -5
If you can't be bothered to find out the actual condition name or look at a website in a week, what kind of help are you actually after or trying to find for your sister?
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Post by femmefatale on Nov 10, 2011 10:53:26 GMT -5
I would definitely say....take her to the Dr.  |
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cranberry49
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Post by cranberry49 on Nov 15, 2011 5:21:23 GMT -5
Her condition is called anhidrosis. She has gone to the dr and tried all that he has given her. Nothing has worked. I have googled and suggested all types of things that I read was helping others to my sister. She has tried them all Nothing has worked. I was looking for personal experiences with this condition and hoping that something that has helped someone here would help her as well. But, I see I was wrong. This subject will not be discussed any further by myself unless someone has personal knowledge and exerience with this condition because to do otherwise is useless. I know all the other things to do. Sorry if I did not make myself clear to begin with. Thanks for all the responses anyway!  |
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mmhmm
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Post by mmhmm on Nov 15, 2011 8:55:20 GMT -5
I think the best thing anyone can tell you, cranberry, is that your sister needs professional treatment. Just trying different things can do more damage than it can help because your sister hasn't found out what's causing her condition. I assume she's seen a dermatologist? If she's only seen her general practitioner, she really needs to see a specialist and have some tests run to try to determine what's causing the problem and if that cause can be rectified.
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Post by fuzzylumpkins on Dec 4, 2011 2:49:07 GMT -5
I am not a doctor and I don't play one on TV.
What is her rash like? Does her skin blister? Speckle? Does she have something similar to weapage?
Has she tried any rash ointments like Calamine lotion?
Oatmeal, ground and turned into a paste, and rubbed onto the skin might help with the rash.
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Post by isabella on Dec 11, 2011 9:21:39 GMT -5
Is it possible sister has more than one 'problem' going on with the 'does not sweat syndrome'? Are there any patterns to when she has the rash breakouts? Location on her body where she's breaking out, isolated areas or everywhere?
I have food allergies to about everything, corn products in particular cause all kinds of skin issues for me (including a blistering type rash as well allergy induced asthma)
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Post by naggie1972 on Dec 26, 2011 14:36:15 GMT -5
oh poor sis, I know my sis breaks out in a rash when she uses sunscreen as it blocks the pores, so similar in function but def. not a chronic condition like your sis'. I will google that one for you, there must be some help out there.
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mizbear
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Post by mizbear on Mar 22, 2012 17:13:21 GMT -5
Still fighting this one...
anhidrosis in and of itself demands certain treatments, but your sister (and I understand the whole insurance issue because I have been there done that with my own medical conditions- try deciding whether to pay the bills or pay for meds you need in order to function daily) needs to be seen by someone who not only specializes in dermatology, but probably endocrinology or another systemic specialist to determine the proper treatment for everything. The rashes may be caused- as someone already mentioned- by an allergy, or by something related to the anhidrosis.
I know it can be frustrating to not be able to get a diagnosis and relief from symptoms in a timely fashion- we were years and years getting a proper diagnosis for my mom and several months longer getting a treatment and she still doesn't have all of her symptoms under control.
Please don't let yourself get down.
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