what's happening???????????????

[diverdown34]

Yo folks how is everyone? Well a little about what has been happening with me............. The New diagnosis from the Neurologist now says that I have Multiple sclerosis (MS), and the doctor wants me on some new drug that cost 2000 bucks a script!!!!!!!!!!!!!!!!! Anyone with information on this condition please post it........... Thanks in advance......... DD/John

[Tennesseer]

Morning, dd34. Sorry to hear about your diagnosis.

I have no direct or indirect experience with MS.

Your script:daily doses or once weekly, monthly? Will your medical insurance cover the bill?

[djAdvocate]

hey, diver. sorry about that diagnosis. MS is a bitch.

[diverdown34]

The doctor wants me on something called copaxone 3 time's a week injections the online pharmacy the doctor referred me to quoted me 2000 bucks for the "script", and I did not go any further with her because I stated that I did not have insurance and that is the "cash" price, so she said she was going to "reach out" to some foundations to see what kind of "assistance" I can get.........  That is where I am now

[weltschmerz]

Aug 13, 2019 12:05:04 GMT -5 diverdown34 said:

The doctor wants me on something called copaxone 3 time's a week injections the online pharmacy the doctor referred me to quoted me 2000 bucks for the "script", and I did not go any further with her because I stated that I did not have insurance and that is the "cash" price, so she said she was going to "reach out" to some foundations to see what kind of "assistance" I can get.........  That is where I am now

See if you can get it from Canada. It's much cheaper.

[kadee79]

Don't discount contacting the manufacturer to see if they have any programs you might qualify for also.

[Artemis Windsong]

A woman I know has MS and it went into remission when she was pregnant.

She exercises like a meaniac now.

[mmhmm]

Aug 13, 2019 12:05:04 GMT -5 diverdown34 said:

The doctor wants me on something called copaxone 3 time's a week injections the online pharmacy the doctor referred me to quoted me 2000 bucks for the "script", and I did not go any further with her because I stated that I did not have insurance and that is the "cash" price, so she said she was going to "reach out" to some foundations to see what kind of "assistance" I can get.........  That is where I am now

Damn, Diver! I'm so sorry! Hopefully, the doc can find a program that will help you. The cost of some of these medications is staggering!

[NoNamePerson]

Don't know if this will be of any help whatsoever but thought I would post it anyway. So sorry you are going thru this.  diverdown34

 www.nationalmssociety.org/Treating-MS/Medications/Copaxone

ETA seems like the first link was a bit misleading unless you clicked on the correct part of the page - one was telling about drug and not where to get info help.

[NoNamePerson]

Aug 13, 2019 12:19:26 GMT -5 weltschmerz said:

Aug 13, 2019 12:05:04 GMT -5 diverdown34 said:

The doctor wants me on something called copaxone 3 time's a week injections the online pharmacy the doctor referred me to quoted me 2000 bucks for the "script", and I did not go any further with her because I stated that I did not have insurance and that is the "cash" price, so she said she was going to "reach out" to some foundations to see what kind of "assistance" I can get.........  That is where I am now

See if you can get it from Canada. It's much cheaper.

Take into consideration that I am someone who doesn't even take aspirin but just curious if he can go to Canada for the injections since I think it is in shot form? Curious as to how that would work. Like I said I am dumb as red brick when it comes to meds.  

ETA: Ok giving some more thought to this I guess maybe get prescription filled in Canada and bring the little "bottles" of med back for dr here to give injections or get the whole thing done in Canada. 

I am really asking out of total ignorance on how all this would work - my learn something new for the day maybe. Keep in mind if I was asked questions about health care here I would be as clueless so just curious.

[thyme4change]

Have you checked Good RX? My sister was prescribed an $1,800 medication and found a coupon for $1,650 off, so it only cost her 150. That said...it wasn't an ongoing medication. Just a one time treatment.

I've known a lot of people who have had success controlling MS with diet, lifestyle, meditation, exercise, yoga, etc. I think one person went vegan. Not that those things are a successful solution for everyone - but look into natural options. It may really help in conjunction with medications, etc. And be aware of supplement scams.

[weltschmerz]

Aug 14, 2019 7:24:53 GMT -5 NoNamePerson said:

Aug 13, 2019 12:19:26 GMT -5 weltschmerz said:

See if you can get it from Canada. It's much cheaper.

Take into consideration that I am someone who doesn't even take aspirin but just curious if he can go to Canada for the injections since I think it is in shot form? Curious as to how that would work. Like I said I am dumb as red brick when it comes to meds.  

ETA: Ok giving some more thought to this I guess maybe get prescription filled in Canada and bring the little "bottles" of med back for dr here to give injections or get the whole thing done in Canada. 

I am really asking out of total ignorance on how all this would work - my learn something new for the day maybe. Keep in mind if I was asked questions about health care here I would be as clueless so just curious.

This.
The people buying insulin in Canada bring the drugs back with them. He can have a MD/PA/RN inject him in the US.

[phil5185]

We have a relative who has MS and has used Copaxone for 17 years. Her results have been great - no relapses, her lesion count has actually gone down since her diagnosis.  Teva (the manufacturer) doesn't make the claim that the drug reverses MS - but it can.

He can have a MD/PA/RN inject him in the US.

Probably not needed, it is a tiny needle, maybe 3/8 inch long. You stab it in the back of an arm, leg, butt, etc.   Pretty easy for most patients. Years ago it was a daily shot. Now it is 3 times a week. Teva has on-going research to make an oral version - but not yet available.  The drug is packaged in dry ice for shipping - for travel it can go un-refrigerated for 3 or 4 days.

[weltschmerz]

Aug 14, 2019 13:01:41 GMT -5 phil5185 said:

We have a relative who has MS and has used Copaxone for 17 years. Her results have been great - no relapses, her lesion count has actually gone down since her diagnosis.  Teva (the manufacturer) doesn't make the claim that the drug reverses MS - but it can.

He can have a MD/PA/RN inject him in the US.

Probably not needed, it is a tiny needle, maybe 3/8 inch long. You stab it in the back of an arm, leg, butt, etc.   Pretty easy for most patients. Years ago it was a daily shot. Now it is 3 times a week. Teva has on-going research to make an oral version - but not yet available.  The drug is packaged in dry ice for shipping - for travel it can go un-refrigerated for 3 or 4 days.

He can buy it here, then have a MD/PA/RN inject him the first time, and show him how to do it.

[mmhmm]

Here's a LINK to the MS Foundation. The site also contains some good links to further information, diverdown34

[diverdown34]

Thanks for the information!!!!!!!!!!!!!  I knew I could count on Proboard's and the Old MSN boards........  Like I said this is all new to me.....  Those that have known me for awhile know what I have been going through, and this is just another step in a long list of "steps"......  I have Good RX, and I have not tried to use it with the online pharmacy but that will be next.........  I will keep everyone "informed" !!!!!!!!