thyme4change
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Post by thyme4change on Jun 21, 2021 10:20:40 GMT -5
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Tennesseer
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Post by Tennesseer on Jun 21, 2021 10:42:16 GMT -5
My dad who had dementia asked my sister/his daughter to marry him. My sister gently reminded him who she was. Dad cried.
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ners
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Post by ners on Jun 21, 2021 12:43:32 GMT -5
One of the times my mom was rehabbing on illness we would walk the halls to build up strength. She would introduce me as her sister. I would tell her she did not have a sister and she would get sad.
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haapai
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Post by haapai on Jun 21, 2021 13:34:27 GMT -5
My great-grandmother came to believe that her son was her husband. Consequently, she treated my grandmother as "the hussy who was sleeping with her husband".
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thyme4change
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Post by thyme4change on Jun 21, 2021 17:42:48 GMT -5
One of the times my mom was rehabbing on illness we would walk the halls to build up strength. She would introduce me as her sister. I would tell her she did not have a sister and she would get sad. My Grandma would tell my Mom that she just talked to my Grandpa on the phone and he was coming to pick her up. Instead of just saying "that's nice" my Mom reminded her Grandpa had been dead for 30 years. And my Grandma would mourn him as this was the first she heard of it. I dont know which was worse, her beloved husband dying every week or so, or the disappointment that he didn't show up - if she still remembered he was on his way.
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Post by Deleted on Jun 21, 2021 18:30:15 GMT -5
“Once a man, twice a child” always comes to my mind when I think about people with Alzheimer’s.
The beautiful thing IMO about the couple in the OP (I didn’t read the article because I didn’t want to cry) is that he still wanted to marry her, the same woman he’d already chosen years before. I hope that was at least a little comfort to his wife, despite everything else. He didn’t remember that they were already married, and he still wanted to marry her. That’s so sweet.
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Tennesseer
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Post by Tennesseer on Jun 21, 2021 18:31:58 GMT -5
One of the times my mom was rehabbing on illness we would walk the halls to build up strength. She would introduce me as her sister. I would tell her she did not have a sister and she would get sad. My Grandma would tell my Mom that she just talked to my Grandpa on the phone and he was coming to pick her up. Instead of just saying "that's nice" my Mom reminded her Grandpa had been dead for 30 years. And my Grandma would mourn him as this was the first she heard of it. I dont know which was worse, her beloved husband dying every week or so, or the disappointment that he didn't show up - if she still remembered he was on his way. Your grandma was my mom who had Alzheimer's disease. After dad died mom would ask where dad was. Mom was told he died. Mom cried. Mom asked again where dad was. Mom was told dad died. Mom cried. I told the siblings stop telling momm dad died. She is always hearing dad died for the first time after she asks. I told them to tell mom dad was just with her and he went back to his room for a nap. Mom was satisfied.
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stillmovingforward
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Post by stillmovingforward on Jun 21, 2021 22:54:47 GMT -5
Tenn - that was the right thing to do and incredibly kind.
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Opti
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Post by Opti on Jun 22, 2021 1:39:31 GMT -5
My great-grandmother came to believe that her son was her husband. Consequently, she treated my grandmother as "the hussy who was sleeping with her husband".
Not surprised. The oldest memories are the ones that persist the longest. So if the disease makes you think you are in your twenties, only people around you in your twenties seem like contemporaries.
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Tennesseer
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Post by Tennesseer on Jun 22, 2021 10:14:19 GMT -5
My great-grandmother came to believe that her son was her husband. Consequently, she treated my grandmother as "the hussy who was sleeping with her husband".
Not surprised. The oldest memories are the ones that persist the longest. So if the disease makes you think you are in your twenties, only people around you in your twenties seem like contemporaries. Which is why to engage a person suffering from Alzheimer's disease or other form of dementia play music for them which was popular when they were young. They often come out of their shells for a few moments or even minutes. And it calms them.
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daisylu
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Post by daisylu on Jun 22, 2021 14:11:26 GMT -5
“Once a man, twice a child” always comes to my mind when I think about people with Alzheimer’s. The beautiful thing IMO about the couple in the OP (I didn’t read the article because I didn’t want to cry) is that he still wanted to marry her, the same woman he’d already chosen years before. I hope that was at least a little comfort to his wife, despite everything else. He didn’t remember that they were already married, and he still wanted to marry her. That’s so sweet. I read the article, and that last quote in it = . DH(42YO) had a traumatic brain injury when he was 19. The doctors have always been upfront with us that he is high risk for early onset dementia, and he often does not remember things that happened recently or time lines get screwy in his head - example : he will often say "Remember last week when we were talking about...?" and in reality it was a discussion we had MONTHS ago. At the end of our trip last week he asked me to send him all of the photos that I had taken so that he could add them to an album he created in Google Photos (we actually share an account, so he would have seen them as soon as they uploaded anyway) for the trip "to help him remember". Meltdown ensued, though not in front of him.
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ners
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Post by ners on Jun 22, 2021 19:17:25 GMT -5
Not surprised. The oldest memories are the ones that persist the longest. So if the disease makes you think you are in your twenties, only people around you in your twenties seem like contemporaries. Which is why to engage a person suffering from Alzheimer's disease or other form of dementia play music for them which was popular when they were young. They often come out of their shells for a few moments or even minutes. And it calms them. I fed my mom on Saturday evening. I also played a couple of CD's. On was a polka CD the other was a Christmas CD that I played all year long. The nurses would turn on the CD's when it was time for bed.
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Tennesseer
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Post by Tennesseer on Jun 22, 2021 19:24:34 GMT -5
Which is why to engage a person suffering from Alzheimer's disease or other form of dementia play music for them which was popular when they were young. They often come out of their shells for a few moments or even minutes. And it calms them. I fed my mom on Saturday evening. I also played a couple of CD's. On was a polka CD the other was a Christmas CD that I played all year long. The nurses would turn on the CD's when it was time for bed.
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thyme4change
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Post by thyme4change on Jun 24, 2021 9:52:35 GMT -5
My Grandma would tell my Mom that she just talked to my Grandpa on the phone and he was coming to pick her up. Instead of just saying "that's nice" my Mom reminded her Grandpa had been dead for 30 years. And my Grandma would mourn him as this was the first she heard of it. I dont know which was worse, her beloved husband dying every week or so, or the disappointment that he didn't show up - if she still remembered he was on his way. Your grandma was my mom who had Alzheimer's disease. After dad died mom would ask where dad was. Mom was told he died. Mom cried. Mom asked again where dad was. Mom was told dad died. Mom cried. I told the siblings stop telling momm dad died. She is always hearing dad died for the first time after she asks. I told them to tell mom dad was just with her and he went back to his room for a nap. Mom was satisfied. My Dad is always going somewhere and doing something. He volunteers and has hobbies and plans - all the time. He is just a guy who can't sit still. True his whole life - still true at 82 years old. It will be so easy to tell my Mom that he is over at the place, doing the thing, and you know how he is. And she will say "yes I do know".
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stillmovingforward
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Post by stillmovingforward on Jun 24, 2021 17:49:56 GMT -5
Our neighbor was cared for for a long time by her husband at home when she had alzheimer's. My dog looked just like one of her dad's dogs. She loved her dad dearly. She would see my dog and get excited because her dad was on his way home because his dog always arrived just before he did. Sad but it used to comfort her. DS1 used my dog to get her to walk home with him one day when he found her wandering.
All the kids knew to play along with her reality.
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countrygirl2
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Post by countrygirl2 on Jun 24, 2021 17:57:50 GMT -5
Hubs said his mom was talking to grandson the other day telling him she had 2 little boys. He said I don't know if she knew who I was or not, he told me, he didn't say anything.
I don't think she knows me a lot of the time. My mom thought I was her sister one time.
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Tennesseer
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Post by Tennesseer on Jun 24, 2021 18:14:10 GMT -5
Hubs said his mom was talking to grandson the other day telling him she had 2 little boys. He said I don't know if she knew who I was or not, he told me, he didn't say anything. I don't think she knows me a lot of the time. My mom thought I was her sister one time. Two weeks prior to moving my parents from Massachusetts to South Carolina to live with my brother and his wife, we had to put mom in a local nursing home to get her medically stabilized. When the two weeks were up, I flew up to Newark, NJ airport, rented a rental car and picked up my sister at the airport. We then drove up to Massachusetts to collect my parents and drive them to South Carolina. My mom was escorted out of the nursing home by my dad, older brother and my mom's best friend. As they were walking to my sister, rental car and me, I walked up to my mom. Mom blankly stared at me as she was absolutely clueless as to who I was. I didn't take it personally as it was not mom's fault. Family and friends cannot take it personally when someone with Alzheimer's disease or dementia has no idea who they are. Once you introduce yourself the reply from them, if they are in the present is, most times, "Of course." That's good enough.
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thyme4change
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Post by thyme4change on Jun 24, 2021 20:39:52 GMT -5
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toomuchreality
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Post by toomuchreality on Jun 24, 2021 22:02:39 GMT -5
I miss my mom. This thread made me cry, although it's very kind and thoughtful.
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thyme4change
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Post by thyme4change on Jun 25, 2021 4:03:04 GMT -5
I miss my mom. This thread made me cry, although it's very kind and thoughtful. 🥀
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toomuchreality
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Post by toomuchreality on Jun 26, 2021 17:52:12 GMT -5
I miss my mom. This thread made me cry, although it's very kind and thoughtful. 🥀 Thank you
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