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Post by The Walk of the Penguin Mich on Aug 28, 2019 17:50:41 GMT -5
23 and me provides a HUGE database for GSK to mine, it was merely a matter of time before they figured out a way of buying access to it. I'm glad my DNA isn't out there for them to use indiscriminately. The biggest disadvantage that I see is that the database that they will mine is going to be highly skewed. time.com/5349896/23andme-glaxo-smith-kline/
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GRG a/k/a goldenrulegirl
Senior Associate
"How you win matters." Ender, Ender's Game
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Post by GRG a/k/a goldenrulegirl on Aug 28, 2019 18:00:09 GMT -5
Yeah, none of those companies ever offered any reliable privacy or confidentiality. I have no interest in sharing my DNA with anyone other than my progeny.
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TheOtherMe
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Mini-Profile Name Color: e619e6
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Post by TheOtherMe on Aug 28, 2019 18:05:29 GMT -5
Why no company has my DNA
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laterbloomer
Senior Member
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Post by laterbloomer on Aug 28, 2019 18:22:10 GMT -5
What is GSK?
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billisonboard
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Post by billisonboard on Aug 28, 2019 18:26:45 GMT -5
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NoNamePerson
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Is There Anybody OUT There?
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Post by NoNamePerson on Aug 28, 2019 18:55:25 GMT -5
I did the ancestry dna thing several years ago. It did help me think that the man whose name is on my birth certificate is most likely my father. I almost did the 23 and me but they seemed to want to dollar you to death with different “parts” and really don’t care at my age if I am predisposed to this crap or that crap. I know almost 0 about family medical background and really don’t care I actually had a doc 7 yrs ago asked if I was adopted But to each his own I say.
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countrygirl2
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Post by countrygirl2 on Aug 28, 2019 18:56:00 GMT -5
If I were young I would be concerned, at my age doesn't matter to me, but maybe it should.
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countrygirl2
Senior Associate
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Post by countrygirl2 on Aug 28, 2019 18:58:51 GMT -5
I know very little about medical background in my families. I heard in that last 15 years there was heart problems in dads family, that was it no specifics. Moms all I know was grandpa died of prostrate cancer. I have a feeling Williams might be in moms, she had a brother and sister that are suspect in my mind. But that's about it. I know dads sisters lived to be very old and no dementia there. Moms too, no parkisons are anything like that in either.
Nothing there that helps us.
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Deleted
Joined: Mar 28, 2024 20:47:11 GMT -5
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Post by Deleted on Aug 28, 2019 18:59:27 GMT -5
I'd find it interesting but unless they promise to get my express consent every time they sell (oops, I mean "share") my data and tell me who's getting it, I'm not playing.
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Deleted
Joined: Mar 28, 2024 20:47:11 GMT -5
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Post by Deleted on Aug 28, 2019 19:04:22 GMT -5
I'm not in there, but pretty much everyone in my (very large) family is, including one of my kids, so it's really not that hard to figure out where I fit in in there.
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chiver78
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Current Events Admin
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Post by chiver78 on Aug 29, 2019 6:06:50 GMT -5
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NastyWoman
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Post by NastyWoman on Aug 29, 2019 10:31:42 GMT -5
If I were young I would be concerned, at my age doesn't matter to me, but maybe it should. If you would be concerned if you were young, you should be concerned now. After all you "shared" your DNA with your son who, in turn, shared it with your grandson. And while GSK claims to be looking for data to research new meds today (generalized data, no names attached), what about insurance x years down the line for your grandson? Once out there it is pretty much impossible to retrieve the data
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countrygirl2
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Post by countrygirl2 on Aug 29, 2019 10:40:41 GMT -5
Nothing in mine so far that is negative, says no parkinsons or alzheimers in mine. Those are the 2 I'm most concerned with, but sure I understand your point. I figure all the labs are sharing every test we have with the insurance panels if they want it anyway.
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hoops902
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Post by hoops902 on Aug 29, 2019 11:12:58 GMT -5
If I were young I would be concerned, at my age doesn't matter to me, but maybe it should. If you would be concerned if you were young, you should be concerned now. After all you "shared" your DNA with your son who, in turn, shared it with your grandson. And while GSK claims to be looking for data to research new meds today (generalized data, no names attached), what about insurance x years down the line for your grandson? Once out there it is pretty much impossible to retrieve the data What about it? If they're going to hold genetic data against you (or your offspring however many generations down the line) for insurance reasons, they could just as easily say "we won't insure you until you submit to this genetic testing" and they've got the same data. I get (I guess, but not really as much as some seem) paranoia around people having your information (any kind of information) that have no actual connection to you. No other relationship with you other than obtaining your information. I don't get the fear that people will have the information that could otherwise get the exact same information. Like I don't want my credit report just floating out there in space...but I'm not worried that a credit card company I want to have a relationship with will have access to my credit report...they're going to have access due to our relationship because they require it. It seems similar to "What if a credit card company got your information from another source then they won't give you a credit card?". Who cares? I don't want my information floating, but who cares if they won't give me a credit card? They wouldn't have given me one anyways because they can get that information either way. I don't want more people to have my information because that means greater risk of it leaking to randoms that I have no connection to. I don't understand concern that someone will have specific information related to you that they'll have anyways if they want it due to your mutual relationship though. Insurance regulations are far more important than what information the insurance companies have about you. They've already got MASSIVE amounts of data about you, and groups of people like you, and projected data about your future and your children's future, etc.
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Post by The Walk of the Penguin Mich on Aug 29, 2019 14:09:20 GMT -5
At this point, insurance companies are not allowed to genetically test you as a precursor for providing insurance. But there is nothing stopping them from mining an open database (that you have volunteered) to find out you carry a gene that may be beneficial to them for purposes of denying life or disability insurance. Not only that, even if the gene is not known when you submit your DNA, there is nothing stopping them from mining for that particular sequence in the future. Assume a new gene is found and you already have disability insurance. What is to stop them from mining their customers DNA sequences to see if the customers carry the sequence? You are insured, but now they don’t want you so they jack up your ratesto the point they are not sustainable, because you have now become a risk to them.
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NoNamePerson
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Is There Anybody OUT There?
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Post by NoNamePerson on Aug 29, 2019 14:23:18 GMT -5
My son says he is going to do the ancestry dna thing because he does not believe his dad is his biological dad. He says this with the eye roll of all eye rolls! I told him I was not screwing around so I know for a fact that he is the father and I am the mother. Of course, I told him he could have been switched at birth and that would explain it for all of us
Oh, and speaking of ancestry - I got a notice yesterday that they have another possible match for me - 3rd or 4th cousin. The only thing that will get my full attention is if sibling pops up since I think I might have a half brother floating around somewhere. Guess I should check out the cousins just in case?
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hoops902
Senior Associate
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Post by hoops902 on Aug 29, 2019 14:24:25 GMT -5
At this point, insurance companies are not allowed to genetically test you as a precursor for providing insurance. But there is nothing stopping them from mining an open database (that you have volunteered) to find out you carry a gene that may be beneficial to them for purposes of denying life or disability insurance. Not only that, even if the gene is not known when you submit your DNA, there is nothing stopping them from mining for that particular sequence in the future. Assume a new gene is found and you already have disability insurance. What is to stop them from mining their customers DNA sequences to see if the customers carry the sequence? You are insured, but now they don’t want you so they jack up your ratesto the point they are not sustainable, because you have now become a risk to them. They're also not allowed to use genetic information like that to deny you coverage (which is why they aren't allowed to test for it). Insurance is HIGHLY regulated, they can't legally just "jack up" your rates for no good reason, they have to comply with what they've filed. So then we say "well what if they don't follow the law"...well that's easy...if they don't follow the law there's nothing stopping them from getting bloodwork or other medical testing done, and then illegally running genetic testing on it to get that information themselves. Insurance companies can pretty much have your genetic information anytime they want it if you're applying for insurance through them. The question simply boils down to whether they are following the law or not. The information is readily available, as they are COLLECTING things which contain your genetic information pretty much anytime they want to. Whether they have a file that lists your genetic information, or a blood sample which contains your genetic information...they've GOT the information, the only question is whether they'll use it.
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Rukh O'Rorke
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Post by Rukh O'Rorke on Aug 31, 2019 12:09:11 GMT -5
On the one hand, I have avoided doing the DNA testing even though I am super curious and would love to know because of something like this, and the ability to track my progeny through time. On the other, we probably aren't far away from DNA being taken at birth and being a standard part of the medical record. So - not sure I have gained anything by avoiding this. But at least for now, my genetic line is free from dystopian-future effects of DNA tracking.... Unless a whol slew of cousins submitted DNA, and the they can identify me and mine via that.
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