Nazgul Girl
Junior Associate
Babysitting our new grandbaby 3 days a week !
Joined: Dec 25, 2010 23:25:02 GMT -5
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Post by Nazgul Girl on Jun 18, 2014 9:01:25 GMT -5
Best wishes for Noah's surgery and his surgical team !
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Deleted
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Post by Deleted on Jun 18, 2014 9:02:38 GMT -5
I'm looking for an update.
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les63
Established Member
Joined: Jan 2, 2011 11:30:35 GMT -5
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Post by les63 on Jun 18, 2014 11:32:41 GMT -5
Noah's surgery went well. No meltdowns so that was great! He is not liking the casts (knew he wouldn't) and wants our help getting them off. He is not wanting to stand yet so two of us need to carry him and get him on/off his changing pad. Noah weighs almost 120 so he is no lightweight. Hopefully by the end of the week he will be less sore and used to the sensory difference. Plus being in the same spot everyday. He can have 5 ml of oxycodone every four hours for pain and 20 cc's of ibuprofen every six hours for pain. Oooooh my aching back. Thanks for the prayers, hugs and good thoughts!  |
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Wisconsin Beth
Distinguished Associate
No, we don't walk away. But when we're holding on to something precious, we run.
Joined: Dec 20, 2010 11:59:36 GMT -5
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Post by Wisconsin Beth on Jun 18, 2014 12:19:50 GMT -5
Make sure you take care of yourself too Les. Heat/ice and meds for your back too.
And good luck with the cast - can he write on it? My Dad favored Mom's knitting needles for getting the itchies inside it, when he broke his arm (back in like 1974) but you've got to be careful with the ends, obviously.
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mmhmm
Administrator
It's a great pity the right of free speech isn't based on the obligation to say something sensible.
Joined: Dec 25, 2010 18:13:34 GMT -5
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Post by mmhmm on Jun 18, 2014 19:10:58 GMT -5
I'm so glad he came through well, les. Surgery is hard on young ones and the recovery is difficult, as well. Give him a hug for me.  |
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les63
Established Member
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Post by les63 on Jun 18, 2014 21:16:19 GMT -5
Noah was a bit better tonight. Put the booties on his feet and with DH's help and mine walked a few steps. Baby steps. He really is learning to walk again. IB again tonight (Motrin for me). So glad Noah has been a happy boy and he still is. |
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sapphire12
Well-Known Member
Joined: Dec 19, 2010 19:02:12 GMT -5
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Post by sapphire12 on Jun 22, 2014 16:55:13 GMT -5
Glad things are looking up for Noah. Wishing for a speedy recovery. Hugs for you and your family.
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busymom
Distinguished Associate
Why is the rum always gone? Oh...that's why.
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Post by busymom on Jun 22, 2014 20:40:35 GMT -5
Hi! Just checking in to see how Noah (and Momma) are doing.  |
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Wisconsin Beth
Distinguished Associate
No, we don't walk away. But when we're holding on to something precious, we run.
Joined: Dec 20, 2010 11:59:36 GMT -5
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Post by Wisconsin Beth on Jun 23, 2014 7:52:57 GMT -5
Hi! Just checking in to see how Noah (and Momma) are doing.  |
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Deleted
Joined: Oct 9, 2024 22:27:16 GMT -5
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Post by Deleted on Jun 23, 2014 8:38:58 GMT -5
les, I asked my parents last night how my great-niece's surgery worked out. It was last year and I hadn't heard anything beyond her mother's FB posts right after. She's doing fine, walking normally now. I hope Noah's outcome is similar!
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les63
Established Member
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Post by les63 on Jun 23, 2014 20:32:55 GMT -5
I'm kind of depressed tonight. Noah is still trying to toe walk. I'm not surprised. This is how he has walked since he started walking. Not trying to be pessimistic but this may be in the percent that this surgery does not work.  Sucks. Not giving up but damn autism is hard. Just feeling sorry for myself AND Noah. |
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sapphire12
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Post by sapphire12 on Jun 24, 2014 2:11:29 GMT -5
to you and Noah. Hopefully, things will improve over time. I know it's not easy for either of you.
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Jaguar
Administrator
Fear does not stop death. It stops life.
Joined: Dec 20, 2011 6:07:45 GMT -5
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Post by Jaguar on Jun 24, 2014 2:57:30 GMT -5
Oh Les I was so hoping this would work for Noah. |
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skubikky
Senior Member
Joined: Dec 20, 2010 7:37:12 GMT -5
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Post by skubikky on Jun 24, 2014 5:33:15 GMT -5
Hang in there kiddo. Many of us out here are thinking of Noah and praying for him to be better each day.
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Wisconsin Beth
Distinguished Associate
No, we don't walk away. But when we're holding on to something precious, we run.
Joined: Dec 20, 2010 11:59:36 GMT -5
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Post by Wisconsin Beth on Jun 24, 2014 8:06:16 GMT -5
I know next to nothing about autism and toe walking - but isn't there some kind of physical therapy to teach him how to not toe walk?
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Post by The Walk of the Penguin Mich on Jun 24, 2014 9:01:32 GMT -5
I'm kind of depressed tonight. Noah is still trying to toe walk. I'm not surprised. This is how he has walked since he started walking. Not trying to be pessimistic but this may be in the percent that this surgery does not work.  Sucks. Not giving up but damn autism is hard. Just feeling sorry for myself AND Noah. Les...has his surgeon suggested PT? If not, then try it out. When you walk incorrectly for a long time, the manner becomes imprinted in your muscles AND your brain. PT helps your muscles move correctly,to walk correctly but it takes a LOT of mental practice not to fall back into old habits and it is something that you need to be cognizant of 24/7. If you have never had to retrain your brain and body to walk, it is hard to understand. Just because physically you can, it doesn't come without a lot of work. |
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greeniis10
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Post by greeniis10 on Jun 24, 2014 12:18:10 GMT -5
100% YES to physical therapy. Even if the doctors showed you and DH what to do and how to work with him we all know how much more willing kids are to listen to someone other than mom and dad! If it is covered by insurance then I'd say pursue it; might be a good break for all of you. Maybe you can sit in peace and read a book in the waiting room while he's there.
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Wisconsin Beth
Distinguished Associate
No, we don't walk away. But when we're holding on to something precious, we run.
Joined: Dec 20, 2010 11:59:36 GMT -5
Posts: 30,626
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Post by Wisconsin Beth on Jun 26, 2014 8:09:45 GMT -5
How are you holding up Les?
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