tloonya
Junior Associate
What status?
Joined: Dec 18, 2010 16:22:13 GMT -5
Posts: 8,452
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Post by tloonya on Feb 12, 2014 23:11:44 GMT -5
OMG! He is so handsome! I can not believe there is any issue there! Pray and maybe he will be having some...I don't know...miracle happenning to him. I do believe in happennings. Best of all. Tons of might to you.
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tskeeter
Junior Associate
Joined: Mar 20, 2011 19:37:45 GMT -5
Posts: 6,831
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Post by tskeeter on Feb 13, 2014 12:14:01 GMT -5
I don't post much. And when I do I post upsetting posts. I think I don't get my point across to most on here so I do get jumped on. Right now I am Not looking for sympathy. I'm trying to deal with my life to the best of my ability. Right now I'm depressed thinking about Noah's future. Autism, nonverbal, not potty trained. He is a happy guy, has always been this way. Great with a laptop but probably is 3/4 year old mentally. Noah will be ten this month on the 26th. I will be there for Noah till the day I die. But I fear one day, he will have to go to a home. And that sucks. Some are good, some are bad. I wonder sometimes if it would be better if he died (of natural causes) before this came about. I'm so scared of him being hurt; it makes me start balling/crying immediately. Damn, he wouldn't understand. Oh God, this is killing me to think about his future. Oh God, I am so scared.... To you that have no idea of what I'm talking about; thank whoever that you will never have to deal with this. On top of everything else this is really hard. I guess I am depressed tonight. Crying.... Les63, don't get too down. Sometimes things go better than we can possibly imagine. One of my nephews has aspergers. Quite slow to talk. As a younger child, impossible for almost anyone but his brother to understand. Much less socially competent that other kids his age. But, things can change. Imagine the surprise of his heart throb older brother to find that his little brother had manged to fill the family hot tub with the high school cheerleading squad. Even as a high school athlete, Big Bro never pulled off something like that! Today, the aspergers nephew is in his second year at the Rochester Insititute of Technology, has done educational enrichment programs for high potential students at MIT, has worked on a couple of pretty sophisticated technology development projects, and has a good circle of nerdy/techy friends (think Big Bang Theory). The nephew's life is not without challenges. He was very upset when he learned that a high school acquaintance was one of the Boston Marathon bombers. I think that nephew took it personally that someone he had talked with and thought was a nice guy could do something that would kill and injure dozens of people. While he reacted more strongly than most of us would, he did work his way past personalizing what someone that he'd only talked to a few times had done. All in all, my nephew's future looks very good. When he graduates from college, I expect that he'll get a job in the high tech field and live a comfortable life on his own tems.
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Wisconsin Beth
Distinguished Associate
No, we don't walk away. But when we're holding on to something precious, we run.
Joined: Dec 20, 2010 11:59:36 GMT -5
Posts: 30,626
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Post by Wisconsin Beth on Feb 13, 2014 13:23:21 GMT -5
Les, he's such a cutie. No wise words here - just hugs.
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cronewitch
Junior Associate
I identify as a post-menopausal childless cat lady and I vote.
Joined: Dec 20, 2010 21:44:20 GMT -5
Posts: 5,979
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Post by cronewitch on Feb 14, 2014 13:06:32 GMT -5
My great niece has down syndrome and may never be independent. She is almost 15 now and needs babysitters still. Two of her BFFs are her age and her mom will leave her with them for a few minutes now but mostly her dad, brother or grandparents. She just doesn't understand things like at Christmas her mom got kittens to hide until Christmas for a friend and when they picked them two of the kittens had special needs. Later when her mom was telling someone about the kittens the girl tells them two of the kittens have down syndrome. She knows not all special needs are down syndrome she goes to a special classroom but for some reason assumed special needs kittens have down syndrome. She seems pretty smart sometimes but does things that are socially wrong like telling her uncle to go home now when he is visiting her mother. She lives on the ipad so loses that if she is rude and her mother counts to three before she straightens up. I think she would love a group home if she was taught that it was grown up leaving home like her big brother will next year. Her goal last time I heard was to work at a supermarket because she knows someone who works there. So if she was in a group home and taken to a job doing something like stocking shelves she could be a real grown woman with a support network. Then if she out lives her parents she will already be as independent as she can be. I wonder how much money she would need to live in a group home.
Crone, My granddaughter lives in a group home with 2 other young women in their early 20's. They each receive SSI. Of that, each month 1/3 of their SSI goes to pay rent. The utilities, food, etc comes from the remainder (they do have EBT cards). Care givers are provided for by the state. The care givers do the grocery shopping, take them to dr appts, and take them on other outtings (to the park for exercise or shopping for clothes). The care givers do the laundry but each puts their clothes away (she is short, so needs help hanging things up). Although the caregivers do most of the housework, each girl is encouraged tobelp to the best of her ability... Medicaid covers their healthcare needs. So she is able to live on her SSI since her rent is subsidized and the caregivers are provided. Can the families provide things too so the home isn't poverty? Our girl is used to living a rich lifestyle with no concept of money. SSI is less than $700 which wouldn't leave much for buying new electronics or things like itunes. Seems like family could bring the household toilet tissue and things to save the residents money. Our girl hasn't got a clue how money works if she gets a gift it is usually a gift card and her mom says this is enough for a video game or this is enough for a DVD then mom pays the difference or keeps the change.
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Gardening Grandma
Senior Associate
Joined: Dec 20, 2010 13:39:46 GMT -5
Posts: 17,962
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Post by Gardening Grandma on Feb 14, 2014 13:13:35 GMT -5
Cheir healthcare needs. So she is able to live on her SSI since her rent is subsidized and the caregivers are provided. Can the families provide things too so the home isn't poverty? Our girl is used to living a rich lifestyle with no concept of money. SSI is less than $700 which wouldn't leave much for buying new electronics or things like itunes. Seems like family could bring the household toilet tissue and things to save the residents money. Our girl hasn't got a clue how money works if she gets a gift it is usually a gift card and her mom says this is enough for a video game or this is enough for a DVD then mom pays the difference or keeps the change. Crone, Yes, the families can provide things. At Christmas, we gave DGD a personal TV set for her room. I buy pants for her a couple of times a year. She is very short (4'10") and even when I buy petite size, they still have to be cut and hemmed. So I do it 6 pairs at a time. Families can gift the person all they want. If your neice lives in WA state, the family might investigate the Lifetime Opportunity Trust: it's an inexpensive way to set up a trust account for the special needs person. The funds in the account can be used for the person's benefit.
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