The Monthly Seizure Update

[Deleted]

(I hate thinking up titles. And, yes, I do write articles for a living and think them up all day long...  lol)

I just wanted to mention my son was granted a scholarship to attend the LPA convention at the end of the month down in San Francisco. The fee was something like $200, so he won't have to pay for itit. At some point in the future, he will make a donation to them to cover the help he is receiving because the added cost would have made the trip cost prohibitive with all the work he keeps missing.

He's still having kidney stone issues and had another seizure event at work last Friday that resulted in his falling over unable to move and ending up in an ambulance. The good news is they did another CT scan and the stone is nearly out. And, by some miracle he still has a job.

They say the kidney stone is causing the new round of seizures. I find that seriously hard to believe... There is some research out there that oxalates can cause seizures for some people and they also cause the stones. But, at this point, no one seems to understand or care to do much more diagnostic work. He's been labeled FND so that's always the answer now, or so it seems.

I bought his bus ticket to SF today for his recent bday, and he will be staying with a family friend. So, all he has to pay for is transportation and food. It should be a lot of fun and everyone in the family is glad he decided to go.

He's been in a sort of long-distance relationship with a LP woman in India, but it seems that's on the "off" now. Kinda glad, and wish he would meet someone local - or at least in the US... 

Still no notice on the art contest I entered. But, my site now has nearly 80 items and I hit 99 followers on Facebook. Slow and steady wins the race, I guess.   

[Tennesseer]

Best wishes for your son, rockhounder.

[gs11rmb]

I'm glad your son is able to attend the LPA conference.  I hope it allows him the opportunity to meet with some medical specialists that can help with his seizures.

Also, how is your older son doing?  Are you and he getting along better now that he's moved out?

[Deleted]

Jun 12, 2019 10:38:44 GMT -5 gs11rmb said:

I'm glad your son is able to attend the LPA conference.  I hope it allows him the opportunity to meet with some medical specialists that can help with his seizures.

Also, how is your older son doing?  Are you and he getting along better now that he's moved out?

At this late date, I don't think my DS will get the opportunity to see any medical providers and he will only be at the conference for a couple of days, but he's looking forward to talking to others with his form of dwarfism and plans to ask everyone he runs into if they have the same issue.    

He wants to go to the full conference next year, so he said he's using this shorter trip to evaluate if he wants to save up for airfare for next year. He's also hoping he can make some friends and find someone to room with in the future.

My older son and his GF were living with her parents. Her father is an alcoholic so after about 3 months I got a call begging me to let them live here until the beginning of August. 

Before agreeing, I gave the older son a list of things I will no longer tolerate from him and requirements he must meet to stay here. They are paying me some rent and buying some groceries. And, he understands that any aggression towards me and he's out.

Honestly, so far, he's been 1000% better. He's still narcissistic and doesn't have a lot of care about other people, but he's behaving because he's seen the alternative and has a lot of peer-pressure from his GF to be able to stay here. 

His GF recently finished school and is licensed to be a cosmetologist, but up in Oregon. Since she can't work in CA, they are moving this summer up to a border town so she can start her career and they can afford a place for them and his dog. They have been going up there looking at places and DS may have a job lined up with the same grocery store chain he already works for. 

The delay is due to a pre-scheduled family vacation she was going on. She asked to find a job after she got home, and that was a reasonable request.

So, I wasn't thrilled for them to move back in, but it's been okay. 

[wvugurl26]

I hope he enjoys the conference and is able to make some connections.

I'm glad to hear you set rules for the older son. You deserve peace and happiness in your own home.

[oped]

So I’m researching Keto diets right now and did you know they were originally used to control seizures? It’s not a 100% effective rate or anything but might be worth looking at.